New Project!

from my facebook pages - Hey, everyone....hope you're all doing well! I've just come up with a new little project, if you're interested. There are so many of you visiting the site everyday. I really do appreciate that! So, here's what I came up with. Why don't you all make a video or write a story about you or your daughter's life with Turner's Syndrome? I can put the videos together so that there's one video for everybody to see each other's stories. It would be posted here and to the home page of my site. The written stories can be put up on the Turner's Syndrome Angels site. If interested, please let me know how you plan on sending me the info. Thanks so much! *C

How has everyone been??!!

Hey everyone, Wow....I can't believe how long it's been since I've written. I've been very busy with a lot of things. Junior year of high school is crazy, my brother is now off at college, and I myself am beginning to look at colleges! On top of that, we all know 2011 is winding down. I had a great year. I'm hoping to make 2012 another great one. I'm looking forward to having more little events and other different things for TS awareness. I hope everybody is doing well, and I'll be checking back here again soon. I promise! =) *C

Any ideas?

Ok, everyone!

I wanted to thank you all again so much for your participation in my TS Awareness Day last month. I hope you all enjoyed!

Well, it's got me thinking. I'd like to do something like that again, but I can't figure out what. I do understand that there are a lot of awareness days, so that's why I'm trying to think of something else.

If you think you can come up with an idea for me, feel free to comment on this post and tell me what it is! =)


*C

Arielle Emerick and Corrin Graham

(This is a picture of Corrin dressed for the pageant.)


This is a great story! Corrin Graham has a cousin with TS, Arielle Emerick. Well, Corrin was a contestant in a very cool pageant! So, with this, she is promoting awareness of TS for her cousin. Corrin's mom sent me this information:

Corrin Graham , age 10 soon to be 5th grader at Wetumpka Middle School in Wetumpka,AL
She is the daughter of Mikel and Jennifer Graham of Wetumpka,AL.
She has one little brother (almost 4) named Mikel Carter.

She loves the color blue. Loves to bake, tumble,rollerblade,swim and collect Disney Pins.

Corrin's second cousin, Arielle Emerick, was recently diagnosed with Turner Syndrome.
They moved in 2010 from MI to Arkansas due to her dad's job relocating to Arkansas. She fell ill and
visited Arkansas Children's Hospital, where they later diagnosed that she has Turner Syndrome. Within days of the TS
diagnosis, Arielle underwent a heart transplant. Arielle is recovering from the heart surgery, but is still in isolation due
to set backs with slight rejection and other medical factors.

Corrin was invited to participate in National American Miss Alabama Pre Teen 2011. She thought it would be a great way
to raise awareness in Arielle's honor. Corrin wanted others to learn more about the characteristics of TS so that
others would be able to get treatment earlier in their life.

Corrin was chosen as a featured NAM girl for examiner.com's national pageant daily.
Her mother, Jennifer, couldn't be more proud of her daughter's involvement to bring awareness to
a cause that is so close to her family's heart.

Later on, Arielle's first cousin was diagnosed with TS as well. It is very rare to run in families.
Usually, it is a genetic fluke, but sometimes there is an omission of the "x" chromosome that
will manifest in certain generations.


Well done, guys! Arielle seems like an amazing girl, and I'm glad to see something like this bringing a family closer. TS awareness is a very important thing to us all! =)

If you would like to learn more, here are some links sent to me by Corrin's mom:

DONATE TO TURNER SYNDROME
https://www.networkforgood.org/donation/ExpressDonation.aspx?ORGID2=411596910&vlrStratCode=Ma%2FXADeM%2FXWp9aRUCrDcU1sF3cHm32QJoP2FVTEiEwqHlB%2Bq9zCNIZO3auW9x2Ta

DONATE TO ARIELLE EMERICK'S COTA
http://cotaforariellee.com/node/4/#Donate


national american miss
http://www.namiss.com/


Corrin's Examiner.com Article
http://www.examiner.com/pageant-in-national/alabama-pageant-hopeful-promotes-turner-syndrome-awareness#comments

TS Awareness Day - Friday, July 15th, 2011

Hey everyone!


Just to let you all know,there will be a TS awareness day on Friday,July 15th,2011. It's through my website, Colleen's Turner's Syndrome Page. Let's get the word out about TS!

Thanks =)

Book Review - Born That Way Series by Susan Ketchen

Hey everyone,

I've just finished reading the books from Susan Ketchen. I think you all should try and get yourselves some copies!


Sylvia is the main character. As you've heard, she has Turner's Syndrome. This is one of the reasons why I think you should read the books. After I read them, I felt that I could totally relate to her!


These books are also not too long, and not too short. They're great for anyone to read. Trust me, once you pick it up, you won't put it down! The books also have a lot to do with horses. I became an even bigger horse fan than I was when I was younger.

Overall, I really think these books are a must read!

Order your copies on Susan Ketchen's website, www.susanketchen.ca!

New mobile site!

Hey everyone!

I just thought I'd let you know that I've made a new mobile version of my site, Colleen's Turner's Syndrome Page.


So, it should be easier to view it on your Ipod, phone, or any other mobile device that may have internet.


Let me know what you think if you see it! =)


*C